Amish, Mennonite, and Hutterite
Genetic Disorder Database

Long QT syndrome 1

Disorder
OMIM #: #192500  (Click to access OMIM database)
Disorder: Long QT syndrome 1 
Also known as: Ward-Romano syndrome
Romano-Ward syndrome
LQT1 
Clinical
Phenotype: prolonged QT interval, syncope, ventricular fibrillation, torsade de pointes, sudden death 
Seen In: Amish
Old Order Mennonite
Old Colony Mennonite
Unknown/Other Mennonite
Hutterite
Remarks: Autosomal dominant 
Mutations
1   Amish  
Gene: KCNQ1
Base Change: C>T, at nucleotide 671
Amino Acid Change: thr 224 --> met
Last updated: 2022-11-05 

References
Lynch MT, Maloney KA, Pollin TI, Streeten EA, Xu H; Regeneron Genetics Center, Shuldiner AR, Van Hout CV, Gonzaga-Jauregui C, Mitchell BD. (2021) The burden of pathogenic variants in clinically actionable genes in a founder population. Am J Med Genet A Aug 31. doi: 10.1002/ajmg.a.62472.
PubMed ID: 34467620 
Streeten EA, See VY, Jeng LBJ, Maloney KA, Lynch M, Glazer AM, Yang T, Roden D, Pollin TI, Daue M, Ryan KA, Van Hout C, Gosalia N, Gonzaga-Jauregui C, Economides A, Perry JA, O'Connell J, Beitelshees A, Palmer K, Mitchell BD, Shuldiner AR. (2020) KCNQ1 and Long QT Syndrome in 1/45 Amish: The Road From Identification to Implementation of Culturally Appropriate Precision Medicine. Circ Genom Precis Med Dec;13(6):e003133.
PubMed ID: 33141630 

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