Amish, Mennonite, and Hutterite
Genetic Disorder Database

Propionic acidemia

Disorder
OMIM #: #606054  (Click to access OMIM database)
Disorder: Propionic acidemia 
Also known as: Propionyl-CoA carboxylase deficiency
PCC deficiency
Glycinemia, ketotic
Hyperglycinemia with ketoacidosis and leukopenia
Ketotic hyperglycinemia 
Clinical
Phenotype: First symptoms appear in infancy; lethargy, hypotonia, failure to thrive, vomiting, encephalopathy, cerebral atrophy, elevated propionate Acute exacerbations occur with infections and increased protein intake; metabolic acidosis, hyperglycinemia, hyperglycinuria, hyperammonemia. If protein intake is not restricted severe symptoms occur; seizures, coma, developmental delay 
Seen In: Amish
Old Order Mennonite
Old Colony Mennonite
Unknown/Other Mennonite
Hutterite
Remarks: Autosomal recessive 
Mutations
1   Amish  
Gene: PCCB
Base Change: A>G, at nucleotide 1606
Amino Acid Change: asn 536 --> asp
Last updated: 2022-11-18 

References
Ehrenberg S, Walsh Vockley C, Heiman P, Ammous Z, Wenger O, Vockley J, Ghaloul-Gonzalez L. (2022) Natural history of propionic acidemia in the Amish population. Mol Genet Metab Rep Nov 5;33:100936.
PubMed ID: 36393899 
Gravel RA, Akerman BR, Lamhonwah AM, Loyer M, Léon-del-Rio A, and Italiano I. (1994) Mutations participating in interallelic complementation in propionic acidemia. Am J Hum Genet 55(1): 51-58.
PubMed ID: 8023851 
Hannah WB, Dempsey KJ, Schillaci LP, Zacharias M, McCandless SE, Wynshaw-Boris A, Konczal LL, Bedoyan JK. (2019) Life-threatening presentations of propionic acidemia due to the Amish PCCB founder variant. Mol Genet Metab Rep Nov 6;21:100537.
PubMed ID: 31844627 
Kidd J, Wolf B, Hsia E, and Kidd K. (1980) Genetics of Propionic Acidemia in a Mennonite-Amish Kindred. Am J Hum Genet 32: 236-245.
PubMed ID: 7386459 
Kuhl A, van Calcar S, Baker M, Seroogy CM, Rice G, Scott Schwoerer J. (2017) Development of carrier testing for common inborn errors of metabolism in the Wisconsin Plain population. Genet Med Mar;19(3):352-356.
PubMed ID: 27513192 
Scott Schwoerer J, Clowes Candadai S, Held PK. (2018) Long-term outcomes in Amish patients diagnosed with propionic acidemia. Mol Genet Metab Rep Jun 22;16:36-38.
PubMed ID: 30013935 
Wenger O, Brown M, Smith B, Chowdhury D, Crosby AH, Baple EL, Yoder M, Laxen W, Tortorelli S, Strauss KA. (2020) Biochemical phenotype and its relationship to treatment in 16 individuals with PCCB c.1606A > G (p.Asn536Asp) variant propionic acidemia. Mol Genet Metab Nov;131(3):316-324.
PubMed ID: 33127324 

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